Community Register

RDH12 IRD Community Register

By taking part in the register, you can help us learn more about our RDH12 community. We can:

  • Find out who we are and where we are to help us support one another
  • Understand how RDH12 affects different people and their families
  • Create opportunities to keep people informed about progress in research and future opportunities to take part in RDH12 studies
  • Share anonymised data that will help researchers better understand the impact of RDH12 on people’s lives.
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