Our History

Eyes on the Future

Previously known as Through Vicky’s Eyes, Eyes on the future started as a fundraising and advocacy campaign in 2017 by Enrico & Silvia, Vicky’s parents, shortly after she was diagnosed with Leber Congenital Amaurosis RDH12

Concerns around Vicky’s vision began to arise around her second birthday. Vicky was looking at things sideways, often having to turn her whole head to be able to see something. Vicky had to pull items close to her face to be able to focus…and she became increasingly scared of the dark… After a few months of tests, Enrico and Silvia discovered that Vicky is affected by RDH12 Leber Congenital Amaurosis (“LCA”), a rare retinal degenerative disease progressively leading to blindness.

LCA is one of the primary cause of blindness in children affecting 2-3 kids in 100,000. 
There is currently no cure.

Vicky is already severely visually impaired. She wears glasses to maximise her residual vision and always wears sunglasses in sunlight as UV rays can further damage her retinas. Vicky is night blind. She is fearful in darkness. As Vicky’s condition is progressive, we know that the limited vision she has left is already deteriorating and she is progressively going blind… 

Through Vicky’s Eyes started in 2017.

Through Vicky’s Eyes started in 2017 as a fundraising and advocacy campaign to help to find a treatment for Vicky and kids like her. In a few years Through Vicky’s Eyes has raised over $1 Million to support research into RDH12 LCA. We also brought together families in a global community and supported scientific collaboration through publications and international conferences. Through Vicky’s Eyes has operated in partnership with existing charities like Retina UK and Retina Italia.

New Name, Same Fight

In 2022, Eyes On The Future was incorporated officially as a Charity in the UK.  Our mission is to raise funds to help the research on rare diseases, eye diseases and inherited retinal disease with, still, a focus on Leber Congenital Amaurosis and more precisely the gene RDH12, to raise awareness and bring together a global community.



2017

Through Vicky's Eyes

In 2017 Through Vicky's Eyes was created by Enrico and Silvia, Vicky's parents, to raise money to help and support research to find a cure for RDH12 LCA.
2017
2018

Drug Therapy/ Small Molecules Grant

In March 2018, we launched a 3 year research project that aimed to identify a possible drug therapy to slow down the progression of the disease. The project has since been extended to a 4th year.

The project is a collaboration between the University College of London Institute of Ophthalmology and Moorfield Eye Hospital (the largest Ophthalmological hospital in Europe)

The project is being led by Dr Mariya Moosajee, researcher and Ophthalmologist Consultant
2018
2018

Eyes On The Future Gala Dinner

In October 2018, in London took place our very first Eyes On The Future Gala Dinner. With more than 180 participants, dynamic entertainment, cocktail reception, a three course meal and a ‘dining in the dark’ experience the night has been a real success with more than £220,000 raised.

It was also endorsed by HRH Sophie Countess of Wessex.
2018
2019

Scientific Conference

In partnership with the Foundation Fighting Blindness (USA) we convened a meeting of families, researchers and representatives from biotech companies and the regulatory community to discuss the advancement of therapies for inherited retinal diseases associated to the RDH12 gene.
2019
2021

Eyes On The Future Virtual Gala

A Gala Dinner similar to one in London in 2018 was supposed to take place in Milan in 2020. With the pandemic, we had to change our plan, but giving up was not an option.

We decided to go Virtual and one year later, in March 2021 we organise our Virtual Gala with more than 700 participants, 80 Auction items and more than 180,000€ raised during the night!
2021
2021

OPUS and Meira GTX

In 2021, 2 companies announced their plan for trials on the RDH12 gene.

In 2018 the first Gene Therapy for LCA (gene RP65) was approved in the USA and Europe (see appendix) and showed successful sight restoration in the treated patients. This is not available to the gene RDH12 but it means that there is concrete hope.
2021
2022

Eyes On The Future

In 2022 Eyes on the Future, previously known as Through Vicky's Eyes, is officially incorporated as a Charity in the UK.

Eyes on the Future will continue to be an inherently personal effort, led by us, parents, families and volunteers. We will continue to document the highs and lows of this journey and share every step and fight and victory. We will only do this under a broader umbrella, meant to tell Vicky’s story and beyond.
2022
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