We are a community who care for people affected by Inherited Retinal Dystrophies (IRDs), specifically those affected by RDH12 IRD. We are RDH12 patients, carers, families and friends, united in our drive to find a treatment.
We are the catalyst of focused efforts to find a cure for the condition. We deliver tangible progress towards its resolution. We bring together patients, scientists, industries and stakeholders. We accelerate research.
We want to help people to see for longer. Currently there is a gap between science – which has made a lot of progress into treating similar conditions – and what is available for our condition. We exist to fill this gap and to create awareness that it can be filled.
Eyes on the Future focusses on advancing treatment for those affected by RDH12 Inherited Retinal Dystrophies who are slowly going blind.
Since we started in 2017 as Through Vicky’s Eyes, we drive collaboration across academia, industry and patients to develop treatments for RDH12 IRD as soon as possible.
To date we have seeded science all over the world, funding cutting edge research on RDH12 and making the results accessible to the full research community.
We have published the first Scientific Landscape and organized two Global Scientific Conference.
We drive awareness through our global advocacy and fundraising efforts.
We ultimately bring together a global community of patients committed to help people affected by RDH12 see the world for longer.
Since 2022, our passionate community has raised money by taking part in some of the most iconic sporting events in the UK, Europe, Australia and beyond — from the London Marathon to the Royal Parks Half Marathon, The Big Half, London Landmarks, Ride London to Brighton, Sydney Marathon to Dam tot DamLoop and more.
These events aren’t just about personal achievement — they’re about coming together. Every mile covered and every donation raised helps us advance research into RDH12 and other inherited retinal diseases.
Whether you’re a seasoned marathoner, a first-time fundraiser, or simply love a good challenge, there’s a place for you on the EOTF team. Join us now!
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