RDH12 Families
& Patient Group

Our RDH12 Families & Patients group has now over 180 people from all over the world: USA, UK, Canada, Mexico, Brazil, Sweden, Cyprus, Switzerland, Spain, Italy, Israel, India and more. 


In 2018, the first ever Patient Information Day for families affected by RDH12 LCA was held in London in partnership with Moorfields Eye Hospital NHS Foundation Trust, UCL Institute of Ophthalmology and Retina UK.

Over 50 families attended from all over the world, expanding our global community to almost 100 families from all over the world.

For Patients

The RDH12 global patient group keeps growing and growing. If you are a patient or a family recently diagnosed with RDH12 Inherited Retinal Dystrophies please contact us.

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