Previously known as Through Vicky’s Eyes, Eyes on the future started as a fundraising and advocacy campaign in 2017 by Enrico & Silvia, Vicky’s parents, shortly after she was diagnosed with Leber Congenital Amaurosis RDH12.
Concerns around Vicky’s vision began to arise around her second birthday. Vicky was looking at things sideways, often having to turn her whole head to be able to see something. Vicky had to pull items close to her face to be able to focus…and she became increasingly scared of the dark… After a few months of tests, Enrico and Silvia discovered that Vicky is affected by RDH12 Leber Congenital Amaurosis (“LCA”), a rare retinal degenerative disease progressively leading to blindness.
LCA is one of the primary cause of blindness in children affecting 2-3 kids in 100,000.
There is currently no cure.
Vicky is already severely visually impaired. She wears glasses to maximise her residual vision and always wears sunglasses in sunlight as UV rays can further damage her retinas. Vicky is night blind. She is fearful in darkness. As Vicky’s condition is progressive, we know that the limited vision she has left is already deteriorating and she is progressively going blind…
Through Vicky’s Eyes started in 2017 as a fundraising and advocacy campaign to help to find a treatment for Vicky and kids like her. In a few years Through Vicky’s Eyes has raised over $1 Million to support research into RDH12 LCA. We also brought together families in a global community and supported scientific collaboration through publications and international conferences. Through Vicky’s Eyes has operated in partnership with existing charities like Retina UK and Retina Italia.
In 2022, Eyes On The Future was incorporated officially as a Charity in the UK. Our mission is to raise funds to help the research on rare diseases, eye diseases and inherited retinal disease with, still, a focus on Leber Congenital Amaurosis and more precisely the gene RDH12, to raise awareness and bring together a global community.