Eyes on the Future
Previously known as Through Vicky’s Eyes, Eyes on the future started as a fundraising and advocacy campaign in 2017 by Enrico & Silvia, Vicky’s parents, shortly after she was diagnosed with Leber Congenital Amaurosis RDH12.
Concerns around Vicky’s vision began to arise around her second birthday. Vicky was looking at things sideways, often having to turn her whole head to be able to see something. Vicky had to pull items close to her face to be able to focus…and she became increasingly scared of the dark… After a few months of tests, Enrico and Silvia discovered that Vicky is affected by RDH12 Leber Congenital Amaurosis (“LCA”), a rare retinal degenerative disease progressively leading to blindness.
LCA is one of the primary cause of blindness in children affecting 2-3 kids in 100,000.
There is currently no cure.
Vicky is already severely visually impaired. She wears glasses to maximise her residual vision and always wears sunglasses in sunlight as UV rays can further damage her retinas. Vicky is night blind. She is fearful in darkness. As Vicky’s condition is progressive, we know that the limited vision she has left is already deteriorating and she is progressively going blind…
Through Vicky’s Eyes started in 2017.
Through Vicky’s Eyes started in 2017 as a fundraising and advocacy campaign to help to find a treatment for Vicky and kids like her. In a few years Through Vicky’s Eyes has raised over $1 Million to support research into RDH12 LCA. We also brought together families in a global community and supported scientific collaboration through publications and international conferences. Through Vicky’s Eyes has operated in partnership with existing charities like Retina UK and Retina Italia.
New Name, Same Fight
In 2022, Eyes On The Future was incorporated officially as a Charity in the UK. Our mission is to raise funds to help the research on rare diseases, eye diseases and inherited retinal disease with, still, a focus on Leber Congenital Amaurosis and more precisely the gene RDH12, to raise awareness and bring together a global community.
Through Vicky's Eyes
Drug Therapy/ Small Molecules Grant
The project is a collaboration between the University College of London Institute of Ophthalmology and Moorfield Eye Hospital (the largest Ophthalmological hospital in Europe)
The project is being led by Dr Mariya Moosajee, researcher and Ophthalmologist Consultant
Eyes On The Future Gala Dinner
It was also endorsed by HRH Sophie Countess of Wessex.
Eyes On The Future Virtual Gala
We decided to go Virtual and one year later, in March 2021 we organise our Virtual Gala with more than 700 participants, 80 Auction items and more than 180,000€ raised during the night!
OPUS and Meira GTX
In 2018 the first Gene Therapy for LCA (gene RP65) was approved in the USA and Europe (see appendix) and showed successful sight restoration in the treated patients. This is not available to the gene RDH12 but it means that there is concrete hope.
Eyes On The Future
Eyes on the Future will continue to be an inherently personal effort, led by us, parents, families and volunteers. We will continue to document the highs and lows of this journey and share every step and fight and victory. We will only do this under a broader umbrella, meant to tell Vicky’s story and beyond.