Silvia Cerolini and the FasterCures LeadersLink Program
LeadersLink Silvia Cerolini – Milken Institute ” LeadersLink gave me new ideas, new allies, a community of supporters, and the confidence to push boundaries for our community.” Silvia Cerolini is the founder and CEO of Eyes on the Future, UK-based nonprofit accelerating research on Inherited Retinal Dystrophies that cause progressive sight loss in children, created […]
Silvia Cerolini: A Mother’s Mission to Rewrite the Rules of Rare Disease Research
Silvia Cerolini: A Mother’s Mission to Rewrite the Rules of Rare Disease Research by Norbert Elnar December 2, 2025 This story is part of a series about founders and experts discovered during the Frontiers Health’s event in Berlin (Germany), where innovative healthcare professionals and disruptive entrepreneurs presented their products, services and ideas. Got a story […]
Beyond being heard: The patient voice as a force for change
Beyond being heard: The patient voice as a force for change By Eloise McLennan – 2025 “There is nothing you can do.” Words that no parent ever wants to hear about their child. For Silvia Cerolini, those words marked the start of a journey that would change not only her family’s life, but the landscape […]
Patients And Industry Need A New Model For Rare Disease Gene Therapy
Patients And Industry Need A New Model For Rare Disease Gene Therapy By Silvia Cerolini – Guest Column | October 10, 2025 My daughter Vicky is 11 years old, and she is going blind. She has RDH12-associated Leber congenital amaurosis (RDH12-LCA), a rare genetic eye disease that causes progressive loss of vision in children. Most […]
The Determined Entrepreneur With Her ‘Eyes On The Future’
For some people, having a loved one affected by a disease for which there is no cure can become a catalyst to do whatever it takes to try to find a solution.